We have good news and we have great news!

Hi everybody,

I hope that this is the first of one or two posts today not least because Louise has been trying to get a post on for almost a week.

As the title suggests we have news. Actually we just have great news which is that the Sheffield Institute was granted full planning permission just yesterday. Having spent my career in architecture, I know that this is often the most difficult part of the process and many projects fall at this hurdle. We can all now look forward to watching our brightest hope rise from the ground. Please don’t forget to visit the Sheffield Institute Foundation website.

The other great news is that having looked at the messages posted on the blog since the article in the Yorkshire Post and our appearance on ITV’s Calendar program, it is apparent that many of them are from people who were previously unaware of MND. This suggests that the campaign is beginning to take effect. So if you haven’t already done so, please, please spread the word to anyone and everyone who will listen.

Finally, we shall be appearing on the BBC’s Look North programme next week. We shall post the date and time tomorrow.

Those of you who bought a copy of the Daily Mail on Tuesday, you will have noticed that we weren’t in it. We hope that this too is in next week’s Tuesday edition but we will try to let you all know before then.

Much love,

Neil was so proud of all of these achievements and tried to mention everything on his blog by way of recognition to those who were reading and listening.

It appeared to be a breath of relief for Neil to know that the Sheffield Institute for Translational Neuroscience had been granted planning permission. He had great respect for Prof. Pamela Shaw and he was very pleased to see her project become a reality. It gave him a little hope, not for himself, but for the future that he would miss.

This post makes me remember that there were feelings of hope sometimes in our household. Every interview was a chance for Neil to build on that hope and it’s lovely to read a post like this where I knew he was gaining a feeling of achievement with his campaign.

Reading this back, however, I realise that Neil had to date made no mention of Emma and Morag and the documentary. Filming had started back at the end of November, so I’m left with a question as to why he didn’t mention it on the blog. I do know that he was filled with such a determination for the project to succeed. Perhaps he didn’t want to be that confident, or put pressure on the filmmakers. I think he knew the documentary would be finished long after he had left us and perhaps this was too much for him to think about in his remaining days. I accept that there are many questions I will never have answers to, but having known the man himself, I know better than to guess. – Louise (2013)

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@breathingfilm tweeted this page. 2013-03-28 12:42:59 +0000
Re-publishing The #Plattitude with new insight from Louise. Today: "Good news and great news!" #MND #ALS http://www.iambreathingfilm.com/we_have_good_news_and_we_have_great_news?recruiter_id=2
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