Sleepy Sleeperson...

Hi guys and girls,

Woke up this morning feeling extremely tired, I can only attribute this to the weekend’s excitement. I had hoped as the day progressed I would become less tired, alas this is not the case. So rather than try and make something interesting out of a particularly dull day, I think I will conserve my strength and bits of news until tomorrow.

I couldn’t even be bothered to argue with my computer so it’s thanks to the little brother that the Plattitude received my message this evening.
Until tomorrow,
much love

Good day, bad day. It’s a wonder that there ever were good days.

He had been talking a lot over the weekend, not just with friends but also his important interview which had taken a couple of attempts. Talking was, as Neil has said previously, like running a marathon for him, but it was also an extremely important part of his life and an ability that he was well aware may have a time limit.

I really feel for Neil again reading this post. The reason that he wrote anything at all would have been to read the comments that came in, they really kept him going.

I’m sure many people stop to think before reaching out to someone who they know is going through a hard time, perhaps wonder if a message will be well received, or if it’s better just to leave it and say nothing.

In Neil’s case, communication made life worth living, whether that be with myself, Oscar, friends or even the strangers who got in touch that he never got the chance to meet. It made his day and without communication he was not willing to go on. – Louise (2013)

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Showing 4 reactions

commented 2013-06-17 10:59:58 +0100
The interview has finally been published today, four years on:
followed this page 2013-05-18 22:31:44 +0100
@breathingfilm tweeted this page. 2013-05-17 01:38:07 +0100
'Good day, bad day. It’s a wonder that there ever were good days.' #Plattitude #ALS #MND
commented 2013-05-17 01:23:24 +0100
These were the comments on Neil’s original post:

January 27, 2009 at 12:05 am
Goodnight Neil,

Just go back to sleep-tomorrow will be better

Thinking of you always



January 27, 2009 at 12:43 am
Eh Up Neil!

Just to let you know I’ve been keeping up with the blog and will continue to do so.

I was thinking of doing a bungee jump of the Cardiac Renal Building for charity (MND) in my batman outfit, but Noreen might not allow it (I might get chased by all the nurses!). I’m sure I’ll come up with some other less stressful way of genrating a few bob for the noble cause over a few pints of the black stuff with the WGI lads!

Anyways keep the spirit up….like I said before the blog was a great idea as you have certainly educated alot of people about MND. I don’t think i’d have had either the wisdom or courage to do the blog….so credit to ya!

Thats all for now!


All the best to you & family. The little lad is a credit yo ya.

PS Uncle Jim says hello.

Aunty Pau’s & Uncle Mel
January 27, 2009 at 2:45 pm
Hi love,
It was really good to see you last night, even though you were very tired. As I said keep out of those dark places and hopefully you will feel a lot better tomorrow when you are back home in your familiar surroundings with Louise and Oscar to brighten your day.

Hope you are able to manage the sports biscuits!

Much love, wish we could get to see you more

Aunty Pau’s xxxxxx

rick nicholls
January 27, 2009 at 2:46 pm
Chin up bud,

Home-time tomorrow, you get plenty of rest and save yourself for full-time Ozpants. Me and Jon did out first Triathlon training run last night (all for MND naturally), a less than quick 5k but it all went well. No bad knees and I also managed to avoid running in the obligatory dog poop! Taking a road bike out for a test drive on the weekend too, serious stuff dude. I miss the pies already.

Big love
Cash x

January 27, 2009 at 9:23 pm
hey dude,

Timmy here on his usual late night train ride back home. Hope you are feeling better today and are looking forward to returning home. I’m coming for flying visit at weekend so get ya best togs on! Can’t wait to catch up in person, just had a beer with brian who told me of his epic poledance for you! How can I top that?! I’m bringing the vasaline and rubber bands anyway so be prepared!

Take care squelly and see you soon!

Tim x

Ps any movie requests let me know before sat!

Lula Stefanski
January 27, 2009 at 9:34 pm
Hey Neil,

Just to wish you well on your return home tomorrow.
Good nite, god bless, sleep tight.

Lots of Love,

Lisa, Rick, Jenson & Jake xx

P.S. Jenson drew a picture of you today with a beard.
He said that you needed the beard to keep you warm….
They both see your pictures on the plattitude and tell me
that ‘Uncle Neil is so brave’
Couldn’t agree with them more xx

Kathy Turvey
January 27, 2009 at 9:58 pm
Hi Neil,
Rest up tonight ready for your journey back home tomorrow. Hope you will soon be feeling better back in your own place with Louise and Oscar by your side.
I was feeling a bit sorry for myself this morning as I have to take Nathan for his 4 year old immunisations. Bit late as he should have had them last August (just shows what a coward I am as I keep putting it off). Anyway as always having read your blog it puts everything in perspective. So I’ll dose him up on his favourite Fireman Sam medicine (aka Panadol) and be brave for both of us.
Thinking of you as always, you are an inspiration even when you are tired.
Love Kathy x

January 28, 2009 at 12:21 am
Hi Fella.
Hope your stay at St. Michaels Home for Retired Actors has been satisfactory- and if me memory serves me correctly, you’ll be treading the boards at home again as of tomorrow?
I’ve been thinking of you a lot, particularly your thoughts on Louise and Oscars trip up North, painful as it must be. You’ll always be part of everything they do.
Can I just say, never having had a sweet tooth, a bought a packet of Jellybabies the other day, and scoffed the lot an a worryingly short amount of time! My teeth felt like they’d been bathed in a light acid. Thanks.
I’ll give you a buzz when you’ve settled back at the ranch.
Love, Murph.
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