Calling all readers!

Good afternoon all,
Thank you for the multitude of encouraging comments posted regarding our special visitor yesterday. The common theme seemed to be seething envy! It was a boyhood dream for me too!

Obviously, yesterday’s post is impossible to follow with any of our daily news. Therefore, today’s edition isn’t news but an appeal. We would like to ask all of our readers and all of their friends, plus anyone their friends know, to help both ourselves and the Motor Neurone Disease Association in our search for prominent public figures who would be willing to lend their support to raising awareness of the condition. It is important that any suggestions you may have are either directly connected to you and/or have previously been touched by MND; this is simply to avoid “cold calling” and to ensure that said public figure is willing and appropriate.

We will be back tomorrow with more news when the excitement of yesterday has simmered down! In the meantime, we would be very grateful if you can don your thinking caps and help us raise the profile of the MNDA to greater heights.
much love,
Neil x

Neil wrote this post in response to feedback from the MND Association about Savile’s visit. I had already been in discussion with them and I knew that any celebrities linked to the charity should really have a strong personal connection to the disease, making them much more qualified to talk about it. Celebrity charity endorsement is a complicated job.

I had sent my contact at the association an email the morning of the visit.

‘Unfortunately, I tried but I couldn’t stop the Savile, he’s coming round this afternoon! I think it’s a big mistake to get him involved as his credibility went way down after the Louis Theroux documentary, and let’s face it, I was thinking much younger and sexier, but we caved at the point the phone rang. Can’t really say ‘no thanks’!'

I also sent a friend a similar email with much stronger wording, but I can’t really share that here as it contains far too many expletives.

I’ll never know if Savile knew or cared that Neil died as little as two weeks after his visit. Thankfully there was no further contact from him. – Louise (2013)

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commented 2013-06-05 13:15:13 +0100
Comments on Neil’s original post:

February 11, 2009 at 9:28 pm
Just wanted to say I am finding your words moving, sometimes funny (which I never expected) but most of all truly inspirational. I am a close friend of Noreen’s (we were at school together in England many years ago!) and she has told me about The Plattitude. I have an uncle with MND so know what a cruel condition it is. Keep fighting. Geraldine

February 11, 2009 at 10:10 pm
Hey Neil,

Sorry I been a bit quiet on this blog, I did however write a huge essay about what I’ve been up to.
Anyway, the timing of your post above couldn’t have been better.
Along with rick & Rachael I’ll be doing a triathlon to raise awareness for you mate. With Rachael’s help I’ve set up my own just giving website.

I’ll be working hard to get fit for it and do you proud mate. Looking to come and see you the weekend after next will be in touch. Take care pal

February 11, 2009 at 10:39 pm
Just a quick note to say that I have emailed the MND association to ask them if they could get their name on the list for Charity Flowers. When you order flowers you can choose which charity for them to make a donation to as a thank you for your custom. I was surprised to see that the MNDA wasn’t on the list. I am sure there must be lots of people out there who would like to order flowers for friends and family and make a donation to MNDA at the same time.

I will keep you posted on their response.

Hope you have had a restful day after all the excitement on yesterday! I don’t know any famous people I am afraid! The only possible claim to fame I have is that I was in a tutorial group at UNi with Martin Fry from ABC!!! He won’t remember me though and let’s face it he is not on the celebrity circuit, is he???

Lots of love


cash & scoob
February 12, 2009 at 3:19 pm
Hey mate,

I reckon you should tap that Stephen Murphy character, he rubs fleshy parts with all the celebs… Just think of Harry Potter, I’m sure he knows Harry, Ron, Hemorrhoid, that fella who was an ewok and Sir big Gambon. If not I reckon he’ll put you in with Max Factor.

Just so you know my traithlon’s are officially set-up so here is my sponsor me please page…

I have a nice photo of me and you after we did that 10K I will upload this weekend, any chance you could hook us up on the blog? I want to raise loads of cash for MND.

Love you mate
Cash xxx

February 12, 2009 at 3:38 pm
just noticed i missed a bit out on the above post, was meant to say “I did however write a huge essay about what I’ve been up to but it disappeared into cyber space”.

I’ve just taken delivery of my “fighting motor neurone disease” running vest.

Take care


February 12, 2009 at 4:36 pm
Hiya wow the fab Jim what a treat. I wouldn’t know how to get in touch with her. But i watch a u tube session on Jessica ?? she played the star in Murder she wrote” she was raising awareness in America as she was saying how her dear sister had MND and the awareness is so important and very sparse. It is so so important that the profile of this disease is raised as it is soo soo very distructive and at the moment of diagnosis, for us was sorry go home, and nobody seems to know what to do with you. Homecare have never heard of it never mind how the mcmillan nurses avoided us. I wanted to but a huge bill board on the houses of parliment with my post baby body. That would provide a view gasps perhaps not as endearing as Gale porter. But it wouldn’t be forgotton!!. I would do anything to gain notice, get rid of this disease so no else suffers as my mum did. I will keep thinking Neil, Louise.
Love Lou Mc

February 12, 2009 at 4:42 pm
Hiya me again, i have just thought. I used to care for an elderly lady who’s son was an actor. He has died but his partner was Harriot ? who played along side Julie Walter in A short trip to switerland, shown recently on BBC . I could try and get a message to her and ask for ??
Just a thought LouMc

February 12, 2009 at 4:55 pm
Just thought again mum loved countdown and went a couple of times .The last time was on her wish list after being diagnosed. I asked the lovely lovely Carol Vordaman for a photo with Mum, i explained briefly about MnD. m not sure how to contact her may be leeds tv centre to forward a letter and photo , but could this be a little publicity.???

February 12, 2009 at 10:16 pm

I can get some music people for you and a few select other celebs i know – ive contacted lee francis (Bo selecta) amongst others

i know lembit cheeky girl person is a big responder to MND as his father died of it and also billy connelly

with regards to the battle of the bands comp im looking for someone to host the final – jimmy would be perfect if you could sling him my way

had some amazing local support – micromethods boss nigel generously donated a hefty cheque today after my mum explained what i was doing with the bands thingy

everyone in the village wishes you well hun and lots of them (more than i expected if im honest) all knew who you were or knew your dad or family etc – such nice things said – not that i didnt know them already.

will call ya mum on monday and see if we can visit im working til 2 so would be around 3-4 ish if thats ok.

massive love to you and yours from me and mine – ashley said if oscar wants to borrow any toys he’s welcome as his daddy is poorly and might need cheering up bless him!

Love you x

February 12, 2009 at 10:49 pm
Hi Old Chap….
What the f…? Missed yesterday’s post but Louise texted me to say that Sir Jim had been round for a Sports Biscuit. He could have timed it a bit better and jangled round at the weekend, perhaps bursting in being piggy-backed by Pat, thumbs aloft while we were watching Borat! I’ve got an Fix-It annual (1983) which Angela Dodds suitably defaced for my benefit which I’ll make sure Oscar sees in the near future; so he can truly appreciate who he was dealing with the other day.
See you very soon,
Love Stephen.
P.s I’ve met Rolf Harris, so stick that in yer pipe and smoke it!
P.p.s …and Pogo Patterson off Grange Hill.
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