My auntie Margaret is now settled on the stroke ward of Dewsbury Hospital and I understand that she will undergo further tests tomorrow. As yet, no news is good news. I also believe that she questioned the need to go to hospital in the first place, such is the mettle of the Smiths (my mum’s family). My mum will be visiting her around about now and will be keeping us posted over the next day or two.
As our thoughts are with my auntie, uncle, cousin and my mum’s family tonight, I will catch you up on our news and trivia another time. We have everything crossed for you auntie Margaret.
All our love,
Neil, Louise and Oscar xxx
So cruel is motor neurone disease that it is not instantly recognisable. Unfortunately, Auntie Margaret went through misdiagnoses of mini strokes and multiple sclerosis – before the devastating news that she was suffering from motor neurone disease.
Neil’s diagnosis was assumed to have come down his paternal line. It was a shock to the family when Margaret, his mother’s sister, was eventually diagnosed with a sporadic case.
Neil didn’t live long enough to learn to this. I don’t know what it would have done to his spirits, he was already fighting hard to raise awareness, he couldn’t possibly have done any more. It’s another reason why myself and the family are so proud of what he did manage to achieve and is continuing to achieve even after his life has ended. – Louise (2013)