And then there was one...

Evening all,
My auntie Margaret is now settled on the stroke ward of Dewsbury Hospital and I understand that she will undergo further tests tomorrow. As yet, no news is good news. I also believe that she questioned the need to go to hospital in the first place, such is the mettle of the Smiths (my mum’s family). My mum will be visiting her around about now and will be keeping us posted over the next day or two.

As our thoughts are with my auntie, uncle, cousin and my mum’s family tonight, I will catch you up on our news and trivia another time. We have everything crossed for you auntie Margaret.
All our love,
Neil, Louise and Oscar xxx

So cruel is motor neurone disease that it is not instantly recognisable. Unfortunately, Auntie Margaret went through misdiagnoses of mini strokes and multiple sclerosis – before the devastating news that she was suffering from motor neurone disease.

Neil’s diagnosis was assumed to have come down his paternal line. It was a shock to the family when Margaret, his mother’s sister, was eventually diagnosed with a sporadic case.

Neil didn’t live long enough to learn to this. I don’t know what it would have done to his spirits, he was already fighting hard to raise awareness, he couldn’t possibly have done any more. It’s another reason why myself and the family are so proud of what he did manage to achieve and is continuing to achieve even after his life has ended. – Louise (2013)

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commented 2013-05-31 14:15:40 +0100
Hi all,
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commented 2013-05-31 14:14:41 +0100
Comments on Neil’s original post:

February 4, 2009 at 10:13 pm
Hi Fella.
Just a note to say I’m thinking on you and the others in your family. Needless to say I danced round the coffee table (it was a chair actually).
Love Murph.

February 4, 2009 at 10:19 pm
Hi Neil,

“Some people dance in the rain and others get wet”.

Auntie Margaret (ex Smith)
February 4, 2009 at 11:16 pm
Thoughts of Love to you all xxxxxx

February 5, 2009 at 5:41 pm
Hi Neil

Am thinking of your Auntie Margaret- and your mum and feeling for her a lot. What a load for her! Thinking of you, Louise and Oscar too and so looking forward to seeing you next weekend.

I’ve managed to get hold of a mini disc player, kindly lent by Fiona at ECA, which we can leave with you if you feel up to recording any of this wonderful blog on audio!

Love to you and all your family.

Emma xox

February 5, 2009 at 7:55 pm
Evening all,
what a dreadful time your having. I will say a silent pray to him upstairs for all, i do every night for you neil , louise and oscar, the table bit well the family across the road think i am loopy lou anyway as i am often running round the coffee table shouting at the kids , wandering across the landing nude as i forgot my knicks after a shower not a pretty sight. But what ever hepls your corse to send goodluck i will endevour to do, who cares anyway after two kids, and having the birthing photos given to the wrong customers in boots, when i called to collect a differant set they said we regognized you, we have some photos. I had forgotten aboout them, when she gave them to me they should have been censored or in a gp practical manual. When i asked my husband to take memerable moments of the birth he did literally, leave that to your the whole of Rotherham have seen my bits, yak.
Night god bless
Lou Mc

February 5, 2009 at 7:58 pm
I’m so sorry, and I know it seems to be too much for one family, and it really does hurt me to know how much you have all given and are still being asked to give.

Though don’t forget, how much of a difference you are making, in the awareness for M.N.D your courage and dogged determination to carry on and fight to the end no matter what life throws at you.
(might not seem fair or worthwhile) but it WILL MAKE A DIFFERENCE.

There is still the positive effect of how in these times of hardship and suffering. Family and friends are rallying together.
Love to you all. Neil
@breathingfilm tweeted this page. 2013-05-31 14:05:12 +0100
#MND hit Neil's family yet again. They didn't know this yet when this #Plattitude post was first published.
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