June is Motor Neuron Disease Awareness month and we're hosting a screening of "I Am Breathing" to raise awareness.
The disease is relatively unknown despite the fact that prominent physicist Stephen Hawking has been paralysed from it. It can affect any adult at any time and attacks the motor neurones that send messages from the brain to the muscles, leaving people unable to walk, talk or feed themselves. The cause of the disease is unknown and there is no known cure.
We're asking a $20 donation at the door that includes assorted popcorn, light savory snacks, and vegan ice cream. There will also be beverages for purchase. 100% of proceeds will be donated to MNDA (Motor Neuron Disease Association).
Its a private venue so we're limited to 25 people only.
I AM BREATHING is about the thin space between life and death.
Neil Platt ponders the last months of his life. Within a year, he goes from being a healthy young father to becoming completely paralysed from the neck down. As his body gets weaker, his perspective on life changes:
"It's amazing how adaptable we are when we have to be.
It's what separates us and defines us as human beings."
Knowing he only has a few months left to live, and while he still has the ability to speak, Neil puts together a letter and memory box for his baby son Oscar. How can he make sense of the last 34 years? How can he anticipate what Oscar might want to know about his father in a future Neil can only imagine? He tries to tell the story of his life from his memories and impressions of love, friends and motorbike rides.
Neil faces Motor Neurone Disease with incredible humour and honesty, determined to share this last stage of his life through a blog that touched many people. With his posts forming the film’s narration, I AM BREATHING tries to listen to Neil as he asks in the last months of his life: "What makes us human?"
59 Franklin St
New York, NY 10013
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