This is another quick note to let you know that we will be appearing as star guests in the final of Strictly Come Dancing on Ice. We have fitted skis to the bottom of my chair so keep an eye out for something really special.
Err, actually the above is not entirely true. However, you may see us on the telly somewhere less glamorous and where legs are not absolutely necessary, or arms for that matter!
You can tune in to BBC1 Look North, the regional news channel for the North of England, where we hope we will be given a broader look at our case as my immediate family members were also involved.
So once again we would ask you to tell everyone you know, and for them to tell everyone that they now.
That is BBC1 Look North programme on television tomorrow, possibly at all editions, and to anyone who misses us, we will be adding the link to the BBC website as soon as we know it. [http://news.bbc.co.uk/1/hi/england/7796041.stm – Ed.]
This was a second, longer news appearance. Neil’s mother Lynne and brother Matthew both bravely contributed in interviews , and I think by now we had become hardened to the shock of the ‘save our son’ angle that was more appealing to the media. We felt that if we had a way of making more people sit up and listen then we should use it, whether we liked it or not. We couldn’t show how much our family was being torn apart without showing our family.
Neil jokes about the reality TV shows because (without naming names!) various visitors, who had given up their time to help us, wanted to keep up with whoever had been kicked out of whichever show each day/week and they became more and more a part of our day. There were so many of them broadcast in the run-up to Christmas, it was impossible to avoid them. Sometimes it felt like we were living in a reality TV show ourselves, there was a similar format in the house between daily challenges, people coming and going, the odd dramatic emotional breakdown in public, cameras following us around, and the whole thing working toward a finale. Watching so much TV, however, strangely gave us a sense of being connected to the world outside our bubble, and also gave Neil something in common to talk about with his carers during a bedbath… never an easy time for polite chat.
That said, I do remember Neil’s comment on being forced to watch a certain soap opera three times a week (again, not naming any names). He insisted it was a ‘deliberate attempt by his nearest and dearest to intensify his state of torture.’ – Louise (2013)
December 22, 2008 at 10:18 pm
I have just watched you all on BBC Look North, which is very easy to locate with google.
Yet again, amazing, heartbreaking viewing.
One of my friends has been looking at the plattitude. She is astounded by your strength and determination to raise awareness. She is the same age as you and has 3 children.
One day there will be a drug that can “fix” this for Oscar because all of us who read the plattitude will make damn sure that it happens.
LOL, Lula, Rick & Boys x
December 23, 2008 at 1:59 am
Hi Neil & Louise,
Here’s the link http://news.bbc.co.uk/1/hi/england/7796041.stm
December 23, 2008 at 2:02 am
Caught this on the BBC website. Don’t know what to say. I really don’t.
Love you, mate.
Louise Hodgson (nee Abberton)
December 23, 2008 at 1:02 pm
you might not remember me, but your mum worked woth my mum for years at BGGS and then she worked for me for a bit at the White Rose Centre. Obviously, I’ve heard all about you over the years via our mums, but I think the last time I saw you was at your Dad’s funeral. As I sit with my new baby daughter on my lap, and reading your blog, she’s getting a bit drenched with the tears dripping on her! Don’t think I can put them down to the new mummy hormones! Your story is unimaginable and so, so moving. You’re probably so sick of being told how brave you and your family are, but really there’s no other word. Please send our love to your mum too, and I know my mum wants her to know she’s always there if she needs to talk.
you are all in our thoughts
Louise, Mike & Evie Hodgson
December 23, 2008 at 8:48 pm
Just seen it on the beeb website, a lovely piece that im sure will do alot of good and really help spread the word. Well done to you all for being so brave and telling it like it is. Having the video online is a big bonus and means im sure that many many more will hear about your situation.
Have a great xmas to you all, we miss you lots and look forward to seeing you at new year!
Tim Soaf & Thomas xxx
December 24, 2008 at 9:48 am
You all did so well on the tv, what stars!
Everyone that I have spoken to, since the programme, are talking about it so that shows what good it is doing.
People are starting to realise what a terrible disease MND is.
Starting to get loads of sponsors for my fundraising diet!!!
So, anyone reading this, please sponsor me and spread the word. We need to get as much money as we can to help.
Thinking of you all the time.
Love to you all.