Lazy Monday afternoon...

Hi everybody,
My rather hectic weekend has been followed by a somewhat lazy Monday afternoon. My mind was so busy chasing around the things I had to do this week that it kept me awake until 2am. This resulted in me sleeping until 11.30 this morning when mum arrived back from her weekend at home.

After lunch I was treated to a session of Reiki which seemed to fix a niggling problem in my throat, as well as leaving me very relaxed.

Fascinating fact 1: Did you know that Louise and I have both been attuned to practice Reiki on ourselves and others? I was a sceptic too until I tried it. There’s definitely something in it, you should have a go.

I was still in bed at about 1pm when my brother popped in to say hello.  After having a very thoughtful time to myself over the last few days, it really hit me how lucky I was.  Matthew’s gentle efficiency in moving me around the bed and then into my chair speaks volumes about his nature.  His modesty will also make him hate me for writing this.  Unconstrained by health and safety regulations, Matt has always handled me as though he has been caring for disabled people his entire life and not just since he was 15 (when he looked after dad in the same way).  So I thought I’d say a quick thank-you to him in front of you all so he would know how much I meant it.  Thanks ‘r kid, I couldn’t ask for any better.

Your comments continue to be a buttress to our morale, I only wish I had the time, energy and air to reply to them all individually.  That said, if I am ignoring a particularly pertinent point or a question then feel free to remind me as frequently as you like.

I’m going to sign off now as I think Coronation Street has finished.  You can tell she’s back.
All my love,
Neil x

It was great that the hospice could give Neil the privacy to spend time with Matt on his own, something which they didn’t get to experience at the house. Having one-to-one conversations with certain loved ones was a big part of Neil’s to-do list.

I remember Matt and I discussing this trip to the hospice one evening, we had both separately been worrying that Neil was going to try to use it as his last trip and request the ventilator to be switched off. His mood had been very up and down, one day good, the next day dark, and I suspect that Neil had the same thought as Matt and I running through his head, making him very unsettled. I didn’t ever want him to have to make that decision, but that was the position he was in, and it must have been a constant source of anxiety for him.

The next few days, however, proved that Neil wasn’t ready to die and he still had purpose in the life he was living.

On a lighter note… Neil had been sceptical about Reiki until my brother likened it to using ‘the force’, and then his inner Jedi jumped on board. – Louise (2013)

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@breathingfilm tweeted this page. 2013-05-07 22:19:36 +0100
"Fascinating fact 1: Did you know that Louise and I have both been attuned to practice Reiki?" #Plattitude
commented 2013-05-07 22:12:24 +0100
Comments on Neil’s original post:

Rick Stefanski
January 19, 2009 at 10:15 pm
Hey Buddy.

Good to hear that you are in good spirits this evening, and feeling relaxed. The Reiki sounds like a great way to relieve the pressures and pains of the day. A session of Reiki is now on my to-do list.

Working late tonight as I have still not caught up from the Christmas break.

I will write again tomorrow.

Sleep well Bud.

Rickster. x

January 19, 2009 at 10:46 pm
Hey hon, was really good to see you at the weekend…sorry for boring you with the holidy pics! Sounds like you had a busy day after we left so pleased to hear you’ve had a nice lazy afternoon today. My mate at the BBC as just confirmed he as passed the details of your story onto the BBC Health Correspondants, not sure if it will do any good but they said they will keep hold of the details and next time they do something on MND will get in touch with me. May come to nothing but anything is worth a try. Hopefully we’ll get up again to see you all in a few weeks. Until then lots of virtual love and kisses xxxx

January 20, 2009 at 7:33 pm
HI Neil

Hope you don’t mind me alerting you to this- but if Morag is down- keep your eye on the jelly babies … She’s a bit sleekit with them when you’re not looking!

Glad you are being treated so well at the hospice.
Reiki sounds a great idea- would love to hear more about it from you and Louise when see you next.

Thinking of you all so much and hoping to see you soon.

January 20, 2009 at 7:49 pm
On this day of historic speeches, I remembered some very wise words that you blessed us with at our wedding, and felt compelled to share them back with you.

“Treat yourselves and each other with respect, and remind yourselves often of what brought you together. Give the highest priority to the tenderness, gentleness and kindness that your connection deserves. When frustration, difficulties and fear assail your relationship – as they threaten all relationships at one time or another – remember to focus on what is right between you, not only the part which seems wrong. In this way, you can ride out the storms when clouds hide the face of the sun in your lives – remembering that even if you lose sight of it for a moment, the sun is still there.”

Wise words indeed. I don’t remember if I ever thanked you for being a part of our day (feels so long ago now…). In any event, I’ll say it now. Thank You.

Love, light and peace,


Kathy Turvey
January 20, 2009 at 10:18 pm
Hi Guys,
Glad to hear you are getting some rest, hope Louise is managing to get some well deserved rest too. I am constantly amazed by your strength, courage and determination that shines through in your blog. You are two amazing people and I know that Oscar will be too. Nick and I often marvel at our own “little cherubs”. So I know how much pride and pleasure Oscar must give you.
Thinking of you
Love Kathy XXXX
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