We have been as reliably informed as one can be in such things that our appearance in The Daily Mail is scheduled for tomorrow. As excited as we are, we would urge caution and have a quick leaf through before buying this time!! Obviously if you are a Daily Mail reader please don’t let this discourage you from buying one anyway!
The communications officer at the MND Association sent me an email early the next morning to let me know the interview had not been published, again. My reply read:
"How frustrating! Unfortunately Neil has had a really bad night. I’m waiting for a doctor and letting him sleep so I’ve not had a chance to break it to him yet.
I suspect the mood is going to be a bit weird here today. Probably best to email rather than phone as you won’t get much sense out of either of us due to last night."
Neil was running out of time to reach further than the local news, and this interview had been an opportunity to be heard nationally. The telephone interview had been enough to physically wipe him out for two days, and now there was a possibility he might not live to see it published. It had not been good news to wake up to and it was difficult for Neil go through the emotions of being ‘shelved’ for a second time.
He didn’t manage to write a post on the blog this day. – Louise (2013)
December 22, 2008 at 9:50 pm
Yes- delighted to see you had your face on BBCTV local tonight
lets hope its the start of something big!!
Love Bryce and Janexxxx
December 23, 2008 at 10:56 am
I hope that this finds you good spirits today. I made it to the pub yesterday, no surprise there I hear you say, and the Pogues-Fairytale of New York came on, as soon as I heard it, I thought of you. It took me back a few years to Christmas time when we stood in C.T.R., sinking a few cold ones under the mistletoe, singing, dancing and being extremely merry…Fantastic memories, fantastic days…
I have not forgotten about the pics that I said I would forward to you, let me know where you would like me to send them. I still have an email address for you but not to sure if the one I have is still up and running.
It was great to see you on BBC TV Local, I feel very privileged & proud to know that you are my friend, and love seeing you together with Louise and Oscar, you have a beautiful family, and you are a beautiful person.
Now, you lay off the sherry this Christmas, and try not to go overboard on the mince pies…
Love you fella
Aunty Pau’s & Uncle Mel
December 23, 2008 at 12:19 pm
Bought Daily Mail, they fibbed you are not in!
All did very well re BBC, really proud of you all.
Love Aunty Pau’s xxxx
December 23, 2008 at 7:41 pm
HI Neil and Louise
So good to see you raising so much awareness about this so well and very moved to hear your mum talk too on the BBC news item. Oscar looked handsome and a bit of a pro with the cameras by now !
Wanted to send you some music or DVd’s – any ideas?
Thinking of you a lot.
Send you both love- and hug to Oscar
Emma ( Morag’s pal!) xox
December 23, 2008 at 9:14 pm
Neil, cracking glamour shot on look north from the pool – mum and dad send love – mum said youre as cheeky looking as ever and it made her smile seeing your cheeky little chops.
she loves ya loads!
will dig out those pics this weekend and laugh at your hair crimes hehe.
big love to oscar and louise – did oscar get his dolphin? hope he likes it
ashley said he will share his toys anyday with him – he also likes smearing food in his hair and mine usually.
December 24, 2008 at 12:01 pm
just wanted to say Hi, having arrived home from travels. I’m so glad that there have been the chances to speak on ‘Look North’ and in the newspaper. This blog is really important and I think you have done an amazing job communicating about the disease and how it affects you and everyone around you. I thought the entry ‘do we ever really know how we feel?’ was incredibly honest and powerful, and I like many others feel the strength of feeling that we need to what we can to raise awareness and money to combat this. I think you have articulated some things which are difficult to say and also which are difficult to get one’s head round – and though I know I’m one of the ones guilty of asking you how you feel – I’m glad to know and as ever, want to do what I can, as do many, many others.
Keep doing what you do and see you soon.
Loads of love,
December 24, 2008 at 3:04 pm
We saw you and your lovely family on Look North just now – so I tgought I would check in!
My dear wife Wendy was diagnosed in June with MND at the Sheffield Hallamshire Hospital. Her’s appears to be different in that it almost exclusively relates to her speech, chewing and swallowing. She is a bit worse than 6 months ago, but not too much.
After Christmas, when I have more time, I will check in again. But in the meantime God bless you Neil, and I hope you manage to have a little joy this Christmas.
December 24, 2008 at 3:16 pm
I don’t know what to say me old mate – I only just found out you were ill, i’ve been reading your blogs and this website and i’d be lying if I said that I wasn’t holding back the tears right now
I’ve been planning on coming over Yorkshire way for several years now to catch up with everyone – but never got round to it yet – typical eh!
It’s been a very long time no see my old friend, my e-mail is attached – please get in touch
Jane and Brian and the family
December 24, 2008 at 3:27 pm
Just wanted to pop by and wish you all a Merry Christmas, and let you know that you’ll be in our thoughts and we’ll be with you in spirit. Spoke to your Mum, Louise, and she said they’ll be with you, so give them a big hug and kiss from us, and one for each of you. Oscar will be a delight this year, I’m sure!
Sorry we’re missing some of the media coverage but I’ll see if I can dig out the online video on the BBC.
All the best, all our love,
Jane, Brian, Kayleigh, Jennie and Bud. XOXOXOXOXO
December 24, 2008 at 3:49 pm
Hi Neil, Just watched the tv report and thought it was fantastic and in-depth… and profound….we send much love.
December 24, 2008 at 3:51 pm
Hi Neil, Louise and Oscar
Lovely to see you on Saturday. You are in my thoughts a great deal. thought you all did very well on Look North!! I am telling everyone I know about MND as my bit of awareness raising.
Keep smiling over Christmas! I have tried to think of recipe suggestions but as you will probably remember cooking is not my strong point and I am nearly always at a loss myself on what to dook for tea without all the extra list of things to avoid.
Maybe this is Louise’s opportunity to think about publishing a cookery book in aid of MND Association???? She would be able to illustrate it with wonderful photos of the food too. My offerings always look like dogs’ dinners!! I am sure hers can only be better.
Lots of love and enjoy Christmas!
December 24, 2008 at 4:52 pm
Just wanted to wish you all a very Happy Christmas.
Have a magical time.
Hope Santa brings Oscar lots of pressies!!
LOL, Lula, Rick & Boys xxx