I AM CHRIS FUJIWARA and I am launching the film in the UK
This is a series of posts by people who are going to host screenings of I AM BREATHING on MND/ALS Global Awareness Day.
I am Chris Fujiwara, artistic director of Edinburgh International Film Festival, and our festival is showing I AM BREATHING.
We’ll be launching the film in the UK on the 20th of June, the eve of MND/ALS Global Awareness Day.
I AM BREATHING tells a heartbreaking story in a compassionate and inspired way. The film can make all viewers more aware of the possibilities and the limitations of their own humanity, by showing how, through his disease, Neil Platt came to experience his own possibilities and limitations in such an extreme way.
It’s vitally important to increase awareness of MND, and I’m glad that our festival has the opportunity to help do that by showing this excellent film.
Can you also host a screening on 21 June, wherever you are?
I AM TERJE TOOMISTU and I am showing this film in Estonia
This is a series of posts by people who are going to host screenings of I AM BREATHING on MND/ALS Global Awareness Day.
I am Terje Toomistu. I'm a young anthropologist, loving documentaries, passionate about global consciousness. I'm hosting a screening in a local subculture house called Genclub in Tartu, Estonia.
While living and travelling around in various cultures I have come to notice a general trend which could be summed up with the words: what is known is socially constructed, what is not known is to be afraid of. As an anthropologist, the tools I work with are about interpretation and translation – from one cultural community to another, from one language to another, from one reality to another. To create better understandings, to fight the fear.
I believe film is a great medium to fight the fear of the unknown. Yet when it comes to the matter of death we find ourselves in a paradoxical situation – we are afraid of death as this is the total unknown. No anthropologist can help us much here with interpretation. Almost all religions have tried to do so, yet death remains outside of our subjective experience, thus creating tensions, creating fear.
I saw I AM BREATHING at the International Documentary Film Festival in Amsterdam which I was attending as a media representative for Estonian independent cultural magazine Müürileht. It was a late night screening, I ended up in tears. These tears were not fully about sadness, but there was also something else – something that could perhaps be explained with this old Latin saying 'memento mori' – remember dying. Remember dying in order to remember living. Death is like a mirror in which the true meanings of life are reflected. Or just as Sogyal Rinpoche said:
"You will all die successfully."
I AM BREATHING is a great film with an incredibly touching story, and I am totally willing to make my small contribution to raise MND awareness in Estonia through organizing a screening.
See you in Tartu. Kohtumiseni Tartus Genklubis 21. juunil.
Details and RSVP here.
Can you also host a screening on 21 June, wherever you are?
I AM RICHARD DAWSON and I am fund-racing in a taxi
This is a series of posts by people who are going to host screenings of I AM BREATHING on MND/ALS Global Awareness Day.
I am Richard Dawson, a 38-year-old IT Professional from the Home Counties in England. I've had a connection with MND since 2001 when I lost my father Nigel to this cruel and wicked disease. I have sadly seen the passing of many others to MND, and this drives me to do as much as I can. My aim is to raise as much awareness and funding as possible.
To raise funds this year I have embarked on something quite mad, I have purchased a 1995 Black London Taxi and have created a massive awareness event called BigMNDrace. The Big MND Race 2013 will see two teams of racers leave Liverpool. A team in cars led by MaNDy, the MND Awareness raising taxi, will leave in convoy and head north to Ben Nevis. Racing against the cars will be a team of cyclists heading west to Snowdon. The winning team is the first to get to their mountain, climb it, and return to Liverpool, all within 24 hours
For more information visit www.bigmndrace.com and follow @IT_MAN_Dawson on Twitter.
For the Global Screening Day of I AM BREATHING I am planning to use the taxi to show the film. The taxi is equipped with a DVD player. So for a totally unique film watching experience, watch this space.
Can you also host a screening on 21 June?
I AM TONY BRAY and I am swimming the Solent
This is the first in a series of posts by people who are going to host screenings of I AM BREATHING on MND/ALS Global Awareness Day.
I am Tony Bray, a radio presenter for Vectis Radio, based on the Isle of Wight, UK. I am supporting MND awareness because I know the devastating effects the disease can have, not just for the sufferer but also for their families and friends. It truly breaks my heart and I just wanted to do whatever I could to help.
To raise funds and awareness I will be swimming the Solent, along with some others, in July 2013. Details can be found on www.swimmingthesolent.info.
Running up to the Global Screening Day of I AM BREATHING I will be preparing a special radio show to be broadcast from 1-3pm on Global Day June 21. You can be part of the show! We are currently looking for short stories relating to MND that we will feature from May onwards. If you have a story to share please let me know in comments below.
I am showing I AM BREATHING with the Isle of Wight Branch of the MND Association on 21 June. Details and RSVP here.
Can you also host a screening on 21 June?