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The thin space between life and death. 'Among the year's most moving films' (@THR). Watch it online or on the big screen

As Emilly’s post below seems to originate from Nigeria rather than Ireland, we’re deleting it…

What a remarkable, brave and generous man and family. To allow us into the reality of this, their most challenging of times. To do so openly, honestly, with integrity, courage and humour is remarkable. I genuinely feel privileged to have been able to be a part of this family’s journey. With huge love and respect. Thank you

I am so grateful to have had the chance to learn about Neil’s story. All that I needed was someone helping me understanding. Understanding the pain, the love, the fears, the falls.

This movie made me feel so close to my dad, it helped me seeing things with his eyes, his thoughts, the thoughts he never wanted to share, keeping the pain within. What I have learned from all that happened, this tsunami of tears, questions unsolved, failed escapes and lost battles and inconsolable falls, is that it is true, unless you have been through the same hell you can not understand.

But you can try, you can try to give all the love you have, even when you are tempted to put all your energies in a fight against it, give love. If I could turn back time to when my dad was still here I would not waste time with anger, I would carry on, giving love.

This movie is hope, is light, is poetry, is love.

If there’s no cure, there is hope. MND is a big monster, but each little hand, each voice, each prayer, each thought is part of the tight that will take all the pain away once all that will be left will be love.

Thank you for the incredible work, passion and soul that you have put in the movie.

I want to open my little window and let the summer breeze grow, whisper and then turn everything in a new sky free of all the dark clouds that changed forever my world.

I haven’t had time to screen the film yet, but will do so tomorrow. Will comment on the film afterward. I am undecided as to whether my husband, who has ALS, should watch it. We’ll see! In any case, thanks to all of you who are bringing the film about this horrible disease to the public so that anyone who sees it can have some understanding as to how it ravages the body of a patient without mercy!! Hopefully, this film will lead to demands for research for Motor Neuron Disease, and perhaps a cure. Thank you.

After having Neil’s Documentary recorded for months, finally found time & courage to watch his moving blog of life with MND, I pretty much cried through the entire documentary as brought back the memories of my gorgeous Dad who passed nearly 3 years ago after being diagnosed for only 7 months.
The strength, love and bravery Neil & his lovely wife portrayed was so moving and showed what living with MND everyday is like, how the disease affects everyone.
Neil has raised the profile of a disease that needs a cure, I’m so glad I finally watched it, and will continue my personal Awareness battle & Fund raising with MND Awareness for my Dad, Neil & every one that’s diagnosed with this heartbreaking disease. One day research will find a cure .
Kerrie @ MND AWARENESS X

Humbling too see the support, don’t think Im reading to watch it yet though. just lost my nan to this horrible disease in ALS form last week and we lost my great nan in 1992 to the Bulba form, so really its a fearful partially possible reality for me. Really hope awareness an try find a cure or some relief for sufferers in the future.

I haven’t watched this yet but am going to, lost my Dad last year to this awful disease, he was 80 when diagnosed so in one way “lucky” he had a long and fulfilling life but in another, how devastating to finish your life that way xx

My grandad died of motor neurones in 1987. I have two memories of him one when he saved me after a reprimand for touching something I shouldn’t and the second when he lost his temper at me aged 7 because I couldn’t understand what he was saying to me. Thank you for reminding me he was a sane mind trapped inside an insane body. Xx

Good job man. Having seen it a second time it didn’t get any easier. The old grainy memory like footage worked wonderfully and that near-last scene with his wife on the bed? That managed to capture love and death in one shot.

Loved the film even though it was so heartbreaking to watch. We lost my aunt to ALS at the age of 47. My thoughts are with Louise & Oscar xxx

Thank you – Neil, Louise and Oscar – for sharing this most precious time that can help spread the word about MND. Your strength and love shines through. I hope you are able to look back with more happiness than sadness, despite what this cruel disease has done. X

I have just watched this beautiful film with tears streaming down my face. The strength of Neil and his wife, Louise astounded me. Thank you for sharing your story to increase the awareness of MND.