Wow! Could it be the T-shirt?

Good afternoon everybody,
I am writing this post to you with the speed of a puma! Could it be that my T-shirt has transferred into me the power of Chuck Norris? Or is it the fact that my new computer etc has arrived and is truly amazing?

Neil-Platt08_320.jpg

For all of those out there facing a similar situation to mine, or indeed those who are not and cannot be bothered to type, there is hope. The new software is far more accurate and the new microphone is more sensitive. Coupled with a faster machine and some bespoke software, I can now navigate my way around a computer more rapidly than most able-bodied people.

©2009 Mark Pinder

This has only been possible because of the help I have received from my speech and language therapist, who put me in touch with AbiltyNet. When they had determined my requirements, the Motor Neurone Disease Association assisted with funding. You will obviously appreciate the difference that this makes to my quality of life, and this is why the fundraising which many of you are now doing is so critical-and so deeply appreciated. I’m sure you have all noticed the various fundraising efforts highlighted in reader’s comments; whilst we are all well aware of the tightening of belts, please try and support each other as much as you are able.

In other news, I have found myself feeling slightly more rested today. Whilst this has been enough to shake away some of the fatigue plaguing me of late, it has not been sufficient to reinvigorate my swallow. My hope is for a few more settled nights and calmer days in order to remedy this.

Due to the imminent return of my son from nursery, and therefore the destruction of the ideal quiet in which I work, I will beg my leave.

Much love,
Neil x

Scratch_that1.jpg

Anyone who visited the house while Neil was writing a blog post will remember (amongst a string of expletives) the sound of Neil talking into his computer and every second or third phrase being ‘scratch that…. SCRATCH THAT you piece of....!’

Between the sound of the ventilator whirring at the microphone, the burping sound produced by the force of air being pushed into his lungs and the general deterioration of his voice, the computer system he had been using didn’t recognise the correct words very often so he had to constantly delete and correct as he wrote. This made it all the more important to have the house quiet for the time he was writing, not an easy task with an army of visitors and a one year old. I’m glad there’s a scene of this in I Am Breathing, as I’ve said before, I found it frustrating that the effort it took to write a post was lost in the reading of his words, especially in the posts that were filled with wit.

Scratch_that3.jpg

The new technology was definitely a welcome addition to our home, and I would like to reinforce Neil’s thanks to the MND Association for assisting in the funding. Everyone knew Neil didn’t have long to live, but that made no difference to the effort taken to improve his quality of life. – Louise (2013)

Do you like this post?

Showing 2 reactions


@breathingfilm tweeted this page. 2013-06-13 20:02:30 +0100
A good day on The #Plattitude. Is it the power of Neil's T-shirt or the new voice recognition computer? #MND #ALS http://www.iambreathingfilm.com/wow_could_it_be_the_t_shirt?recruiter_id=2
commented 2013-06-13 19:42:42 +0100
Comments on Neil’s original post:

buddy
February 17, 2009 at 12:14 am
The pen is mightier than the chisel
Or the plattitude is mightier than the sword.

Think of poetry like carving with words, the page you write on is your block of marble, smooth cold and lifeless. Some areas of your sculpture only get light attention. while others are manipulated in to infinitesimal detail, with the precision of an optical lens maker, you hone your words in to every miniscule crevice and crease on the page, to bring the subject in to microscopic focus.

Leading the readers eye of imagination on a literary architectural fantasy of verse, projecting a vivid proliferation of emotions in to every area of the id. Using a delicate mental chisel to chip away and clarify the hinted innuendo, constructing then demolishing images with the flick of your wrist.
The perceptual beauty of the piece imprinting it’s self in the readers psyche ,
Then striking with a fucking! Heavy mallet to awaken conciseness and debate in the reader.

Waxing lyrically around the edges, fine finials and florets, decorate the piece with a baroque opulence giving it a life of its own, sculpting it in to something tangible and soulful,
Or just say it as it is !
With minimalist clarity.

Then pen-ultimately, properly, polish the poem’s presentation, precisely punctuating to perfection the power of the (plattitude)
Pen.

you dont have to post this you can edit it as you will, use it if you can.

love from Neil

Tim
February 17, 2009 at 9:24 am
Never underestimate the power of chuck! Even jack bauer would get his ass kicked. Seriously. There’s lots of proof on the interweb, it’s been studied fastidiously

Glad the new puter is kick ass, that’s awesome. Now rest up dude and speak to you soon x

Tim
February 17, 2009 at 9:24 am
Never underestimate the power of chuck! Even jack bauer would get his ass kicked. Seriously. There’s lots of proof on the interweb, it’s been studied fastidiously

Glad the new puter is kick ass, that’s awesome. Now rest up dude and speak to you soon x

Brian
February 17, 2009 at 10:51 am
Hope your swallow improves and hope Ozbo didn’t cause to much mayhem. Glad you’re rested and great news about your new communication bits n’bobs.

Love,

B&G

Jessica
February 17, 2009 at 11:47 am
lovely to know the new software is helping you, great news!

Bryce
February 17, 2009 at 5:41 pm
Holy shit Neil!!

I guess now your the fastest MND sufferer in the Cyber world

-You’ll be an embarrassment to Stephen Hawking soon!!!
Good on yer mate glad to see you are rocking with the new gear!

Love ‘Dad’
THE THIN SPACE BETWEEN LIFE AND DEATH
Film by Emma Davie & Morag McKinnon
Watch it online
Order the DVD
Pay it Forward
Make a donation
STEM CELL REVOLUTIONS