We have good news and we have great news!

Hi everybody,

I hope that this is the first of one or two posts today not least because Louise has been trying to get a post on for almost a week.

As the title suggests we have news. Actually we just have great news which is that the Sheffield Institute was granted full planning permission just yesterday. Having spent my career in architecture, I know that this is often the most difficult part of the process and many projects fall at this hurdle. We can all now look forward to watching our brightest hope rise from the ground. Please don’t forget to visit the Sheffield Institute Foundation website.

The other great news is that having looked at the messages posted on the blog since the article in the Yorkshire Post and our appearance on ITV’s Calendar program, it is apparent that many of them are from people who were previously unaware of MND. This suggests that the campaign is beginning to take effect. So if you haven’t already done so, please, please spread the word to anyone and everyone who will listen.

Finally, we shall be appearing on the BBC’s Look North programme next week. We shall post the date and time tomorrow.

Those of you who bought a copy of the Daily Mail on Tuesday, you will have noticed that we weren’t in it. We hope that this too is in next week’s Tuesday edition but we will try to let you all know before then.

Much love,
Neil


Neil was so proud of all of these achievements and tried to mention everything on his blog by way of recognition to those who were reading and listening.

It appeared to be a breath of relief for Neil to know that the Sheffield Institute for Translational Neuroscience had been granted planning permission. He had great respect for Prof. Pamela Shaw and he was very pleased to see her project become a reality. It gave him a little hope, not for himself, but for the future that he would miss.

This post makes me remember that there were feelings of hope sometimes in our household. Every interview was a chance for Neil to build on that hope and it’s lovely to read a post like this where I knew he was gaining a feeling of achievement with his campaign.

Reading this back, however, I realise that Neil had to date made no mention of Emma and Morag and the documentary. Filming had started back at the end of November, so I’m left with a question as to why he didn’t mention it on the blog. I do know that he was filled with such a determination for the project to succeed. Perhaps he didn’t want to be that confident, or put pressure on the filmmakers. I think he knew the documentary would be finished long after he had left us and perhaps this was too much for him to think about in his remaining days. I accept that there are many questions I will never have answers to, but having known the man himself, I know better than to guess. – Louise (2013)

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commented 2013-04-11 16:09:23 +0100
Comments on Neil’s original blog post:

Victoria Holdsworth
December 18, 2008 at 5:13 pm
Hi Neil!

Sorry I have been such a rubbish friend over the years but there has never been a day goes by I don’t think about you.

Spoke with Matt and your mum over text – if possible id like to come visit you this weekend if at all possible – really like to see you and give you a big hug and of course to meet oscar.

Back in ardsley now – things all sorted with mum and dad – mark is married with a little boy ashley who is adorable just like oscar – he too is very ill and sadly his health is in serious decline also, but like me he’s a fighter.

so much to tell you and probably vice versa

your mum has my mobile number and if you need anything and i mean anything im there. always was and always will be for you and your family

doesnt seem that long ago that your mum was screaming at you to get jamie the dog out of the stream, when we sprinkled your dads ashes, as he was eating them hehe amazing how much humour you can find in the saddest times.

ive organised a charity event in new year at the bay horse so will let ya mum know details as soon as ive organised it fully

im a music journalist these days and writing a kids book – now i have someone special to dedicate it to and when it gets published i would like all profits to go to your fund – no questions asked.

hopefully see you very soon my friend and remember how much i love you – always have always will you are one the kindest most amazing people i have ever had the pleasure of having in my life and i am always grateful for that – even though i did lose more hair form having my head gaffer taped to the school piano whilst doing the productions.

mum and dad send you their love

Vikster xxxxx

Peter
December 18, 2008 at 8:52 pm
You may not have made the Mail and the BBC but you hit the front page with the Morley Ob. Fame at last!!!!!
Peter

Sas
December 19, 2008 at 10:30 pm
Just catching up with several posts at once – what great news all of this is, and the voice recognition software development as well. It’s fantastic that awareness clearly IS being raised – what amazing work you are doing here; this can only be good and will gather more and more momentum…. Thinking of you always and sending lots of love, Sas, Mike and Megan x x x
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