Talk about a long weekend!

Evening all,
It certainly feels like it has been and it has left me thoroughly exhausted. You will know about tsunamis from our earlier posts, well, one has passed through this weekend. All is well now so you needn’t worry about any of us. I am however too tired to write the usual witty prose and simply dropped in to let you know that I’m still here!

I will do my very best to make up for it tomorrow, providing something interesting happens of course!
All my love,
Neil x

PS: It’s great to hear from Mr Ibbotson. I remember our first band, playing electric guitar in the garage and our big break gigging at Westerton junior school! Thank you for the music! I always remember being jealous of you playing lead guitar, my classically trained fingers would never seem to let me be anywhere near your seemingly natural ability. And you could play the banjo and mandolin! Never stop playing Daz. x


Neil loved to play his guitar, I remember watching him play it to Oscar as I decorated the Christmas tree in 2007, Oscar’s first Christmas. I remember watching his hands. This was before Neil went through all the tests, but we had already started to worry that he could have motor neurone disease. I remember watching his hands and thinking that it couldn’t possibly be such a bad diagnosis as he played with such intricate dexterity. I found it hard to imagine that anything could take that away.

I still have one of Neil’s guitars, in it’s case, waiting for Oscar to show an interest in playing music. I know how much Neil would have loved to teach him and tell him stories of how much fun he had through playing the guitar. It even got him out of trouble when he ran out of cash in Canada, he managed to find a bar that would pay him to play. Oscar’s a little young yet, but I would love to see him play that guitar in the future. – Louise (2013)

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@breathingfilm tweeted this page. 2013-05-24 12:49:29 +0100
With a UK bank holiday weekend ahead of us, a good #Plattitude fit: "Talk about a long weekend!" #MND #ALS http://www.iambreathingfilm.com/talk_about_a_long_weekend?recruiter_id=2
commented 2013-05-24 12:21:44 +0100
Comments on Neil’s original post:

Andrea Kler
February 1, 2009 at 11:14 pm
Hi Neil

It was good seeing you today.

Little Oscar looks so much like you did at his age, what a gorgeous little chap he is.

You take care and love to you all.

Love Andy xxxxx

Angela Murray
February 2, 2009 at 12:03 am
Dear Neil

You write with such sublime compassion and true love of life…. And I’m stumbling ineloquently to say how much your blog leaves me with a sense of wonderment and pure unadulterated awe as does your lovely Louise to whom I say a very warm hello. It’s been many a year… Must’ve been some do at BAFTA towers when we last met…! I’ve been reading both your words on your blog and hearing about you from some very dear mutual chums up in Glasgow and trying to find the words…I kinda want to thank you for so generously sharing your most precious life in your blog. I feel very privileged to read about you and Louise and wee Oscar – (my god he’s just so cute..!) You’re words and generosity of life and heart and spirit make a huge impact out there. You make the difference that most only dream of making with your honesty your courage and indeed your rather fabulous self-deprecating wit – a gift in itself. It’s taken me long enough to write to you and loads of folk will be reading and thinking and feeling more deeply about all that you say. I’ll keep spreading the word Neil. Rest assured of that. And I wish with all my heart that there was a cure right now. Right this very second. But there will be and your strength and words are speeding that process along. Of this there is no doubt. None whatsoever. I send you and Louise and wee Oscar love from Glasgow.Take care. Angela xx

lindsey fear
February 2, 2009 at 8:57 pm
Just to let you know I went to that very first gig at Westerton school!! I thought you guys were truly awesome!!!!!!!! Sad eh????

Linds xxx
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