Photos and Wellies!

Hey everyone,
It’s been another busy day of chaotic order in the Platt household, the inevitable and now predictable result of which is that I am completely knackered!

Following the morning’s normal ablutions, the fine grooming element more extensive than usual, I landed in the standard arrangement in the standard chair. I was particularly polished today on account of a visit from a photographer from a popular national newspaper. The resulting photographs to accompany the interview conducted while I was at the hospice. One of the reasons I’m so tired is because of the length of time it took to get me in to my Speedos… yes,I still look good in a banana hammock! Seriously though, we do not know yet when the article is to run, but when we know, you’ll know.

Neil-Platt18_640.jpg

©2009 Mark Pinder

Following the photo session I had a visit from two friends, Bryce and Jane, and I would like to take this opportunity to officially wish them happiness in their pending move to somewhere in/on/near this side of the Irish Sea.

I then decided to write today’s blog. Fortunately my wife and son arrived home just in time to prevent my computer being carefully sat on the tracks of the nearby railway. You have no idea how rapidly the frustration turns to outright incandescence when the machine decides not to listen, thereby preventing me from doing the one thing I can still do which produces tangible results.

Welcome distraction came from Oscar as he tried and then succeeded to climb in to his Granny’s bright red wellies. The resulting effect was pure slapstick and would have lifted the darkest of moods.

As I am in bed already and fighting sleep, I will leave you with that image until we speak tomorrow.

Much love,
Neil

PS Thanks again to Louise for typing, otherwise there wouldn’t be a post tonight at all!


The photographer came and went but unfortunately this interview was never published. It was Neil's last newspaper interview and the awareness piece he was most proud of as it was for a national broadsheet.

At the time the journalist was trying to get the piece out before Neil died, but sadly this didn’t happen. There was another chance to run it after his death, for which I gladly gave permission, but unfortunately it was shelved again. – Lousie (2013)

Louise_and_Neil_540.jpg

©2009 Mark Pinder

Thanks to Mark Pinder for giving us permission to publish his photos on this blog for the very first time. – Ed.

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commented 2013-06-17 11:00:30 +0100
The interview has finally been published today, albeit without Mark Pinder’s photos: http://www.guardian.co.uk/lifeandstyle/2013/jun/16/motor-neurone-disease-neil-platt
commented 2013-06-10 21:05:17 +0100
Original comments:

Noreen
February 12, 2009 at 10:58 pm
Goodnight all, I can go to bed now too, now that I’ve had my fix, you are all wonderful to produce posts every day, I expect them now! Sleep well everyone. Talk soon
Love
N

Greta Loughlan
February 13, 2009 at 1:23 am
Helloo, It’s Sara’s sister Greta here! I’ve been on this website reguarly in the past few months and I think it’s a really good idea to way to keep in touch with people and stuff and also describe to people what is going on. It was really nice to see Louise and Oscar a few weeks ago in the East Neuk, Oscar is really very cute Anyway the reason I was really was posting a blog was just to say that i think the website is a good way to raise awareness of the quite unknown MND.. and also I think it’s really brave what you are doing

Aunty Pau’s & Uncle Mel
February 13, 2009 at 12:36 pm
Well done you, your patience is remarkable with your computer, I get seriously frustrated with this both at Andrews Gwynne and at work with Uncle Mel – there’s many a time they have been threatened with going through the window!
Seriously though you don’t know how much everyone here appreciates all you have all managed to do writing this blog – keep up the good work. Hope you had a good nights rest, see you soon
Love to all
Aunty Pau’s xxxxxx

Sara
February 13, 2009 at 2:18 pm
Hi you three!

Sorry – I have been a bit quiet on the blog this last week. I have still been reading your posts every day with admiration and love. Sometimes, though, it is just hard to know what to say and I feel that I keep saying the same things time and again. Things which I know are not going to change the reality of the situation. I just wish that we were not so far away so that I could show you how much I love you three and not just have to tell you.

Anyway, just wanted to let you know that we are still here and still reading.

We will see you on the 27th when it will be big hugs all round.

Sara x x

Sas
February 13, 2009 at 4:08 pm
tee hee hee – Megan has done the same with my slippers and a particular pair of clip-cloppy shoes that have taken her fancy; she hasn’t attempted a boot climb-in like Oscar though – would love to have seen that!! Hope you slept well Neil, and that you’re feeling refreshed today. Happy Valentines Day for tomorrow all of you. We’re taking Megan to a Thomas the Tank special kids day at a steam railway – she’s obsessed with Thomas so reckon she’ll be beside herself (so will Mike) xx

Heather Roockley nee Mackay
February 13, 2009 at 7:03 pm
Hi Neil and family,

Heather here, an auld aquantance from your Architeture days at the Art College. After hearing about you earlier this week I have been logging onto the blog and can’t quite beleive what I’m reading. You have an amazing spirit as do your family and friends which is truly inspirational.

This may be trivial and I apologise profusley if it is but I have just been watching the five movie (I am on maternity leave!!) which was based on a true story of Jenifer Estess who was diagnosed with ALS a form of MND and who founded project ALS to raise funding for stem cell research. They have an amazing array of hollywood superstars supporting them but it is America. http://www.projectals.org

Keep enjoying the special times with your gorgeous wife and wee Oscar.

Lots of love

Heather, Simon and Dylan xxx

alice
February 26, 2009 at 4:46 am
what a bloody shock

No attempts at seriousness are going to work because I have no idea of what’s going on with you now. Still relatively clueless and airyfairy!

the dying part must surely be the biggest PAIN IN THE ASS known to man…

Your body may be letting you down, (in the most shitty way possible), but you’re still a NEIL….

Glad I caught you before departure….you were a BIG BLOODY PAIN IN THE ASS YOURSELF….but big pains in the arses…interesting and vibrant, are wayyyyyyyyyyyyyyy better than boring longlasting weeds.

Well done for having a son
Well done for getting married
Well done for not being a twat
and well done for being a NEIL………..

….you’re probably not in the mind set for taking this in any way seriously….but I’ll come and give you a friendly kick in the ass on the other side….and don’t think I’m kidding.

Alice
x
@breathingfilm tweeted this page. 2013-06-09 21:26:05 +0100
Photos of Neil taken for a major UK newspaper – now published for the first time on The #Plattitude. #MND #ALS http://www.iambreathingfilm.com/photos_and_wellies?recruiter_id=2
THE THIN SPACE BETWEEN LIFE AND DEATH
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