I Am Nervous

Louise Oswald (who was Neil Platt's wife) has just written this on the train to London for the screening of I AM BREATHING at Westminster.

Perhaps nerves are responsible for the fact that I'm just realising now what a huge opportunity this is – and feeling the weight of responsibility on my shoulders to make sure that all those feelings of fear, disbelief and utter heartache are properly put across.  

I'm not a politician, I'm not a scientist, I have no medical training; what I do have is a little six year old boy at home, who has already lost his daddy to motor neurone disease and who in the future will ask me questions. I may no longer be in that desperate situation of caring for a loved one with MND, but I do desperately want to have better answers for my little boy. If I don't get these emotions across, then all we are, as a cause, is just another set of numbers.

I'm more than tempted to ask the Lords and MPs to sit on their hands for the length of the Q&A, then point and wave my finger at anyone who moves an inch to scratch an itch; this may be a step too far. It would be a very quick way of getting a huge point across, but now that I think about it, they may think I'm making a comment on their voting skills rather than trying to create empathy for a tiny part of the physical torture of MND. So, as tempting as it is, probably best not. I will try harder to find the right words instead.

I Am Nervous... but I'm also grateful for the opportunity. I have no idea what audience number we may achieve at Westminster, but at least we're getting Neil and MND through the door.

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commented 2013-10-14 17:25:57 +0100
Good luck… My mum, her brother and sister all died of this horrible disease. I want to get gene tested, I know it does not tell u that I will get it but will let me know if its passed down our generations…. Ur little boy will be proud of his dad and also his mum for continuing to get answers for him. Xx
commented 2013-10-14 16:15:21 +0100
Good luck Louise here’s hoping you can get through to them the everyday problems of a MND sufferers & their family’s & the lack of support we receive from them
THE THIN SPACE BETWEEN LIFE AND DEATH
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