Hi there everybody,
Just reaching the end of what feels like a very long day, so I’m sure you’ll all understand if me and my typist (hello, it’s Louise, this is the first time I’m doing his secretarial since he was paying me for it and I’m not happy) keep things brief.
I’ll tell you the tale of this morning’s events (he’s picking on my typing skills) and my return home in detail tomorrow, but suffice to say that anything I felt compares nothing at all to spending four hours watching my son play. This was swiftly followed by a real round the kitchen table family dinner (he’s doing it again) and topped off with Oscar sitting on my knee for bedtime milk. It’s difficult to explain but if I went in my sleep tonight, I would feel as though I had achieved everything I ever wanted, save for the minor inconvenience of having to communicate it through my wife instead of my computer (some time soon I will be writing a post about how living through this does cause a lot of bickering).
Sardonic wit aside, I mean everything I say. It was magical.
Sleep well. Much love,
Neil x (and Louise)
PS: If you read anything else on The Plattitude ever, read Ricky’s comment/essay on my post The Taxi is Booked…, it contains things which I could never endure and sharing experiences like this is what this site is about. We share what we share with you for more than a pat on the back or our own personal gratification. I hope Ricky’s comment will kick start the full potential of our blog. It’s yours too.
Bickering was now part of our routine but it was good to have him home. Somewhere in my trepidation about his homecoming I had forgotten how basic it is to want to care for someone you love. You’re not caring for a stranger, you’re caring for someone you can read, anticipate their needs, their wants, understand their emotions, and enjoy their sense of humour. It makes you content at the end of a day that you’ve achieved looking after them, no matter what difficulties the day has brought.
I’m sure this sounds familiar to any new parent. It was the same feeling for me with both Neil and Oscar. Their contributions to my day were very similar, they both needed me physically to help them, care for them and to listen to them but they both gave me back precious moments and memories, love and a feeling of pride. – Louise (2013)
January 28, 2009 at 11:51 pm
I read Ricky’s post and it was pretty profound – unimaginable really but then, I suppose if you are in a situation, you just have to get on with it whilst others around you marvel at your strength, whilst feeling completely powerless.
Neil, I am really glad to hear that you are happy to be home and that you were able to enjoy watching that wonderful wee boy of yours and have a family meal together – at least they weren’t throwing food at each other – which is what I have to put up with round the dinner table – and that’s just Douglas!!
Here’s to many more ‘magical’ moments.
Louise – give Neil a slap from me if he starts picking on your typing again – you are doing a great job and he knows it!!
Give Oscar a big kiss from his Auntie Sara
Love you all very, very much xx
January 29, 2009 at 12:21 am
Well I said my goodbye,
so now I’ll say hello, “HELLO” its been a long time, (coming but im sure a change is gonna come).
What happened I leave the dam country for a second
(9 years) / “run away”
and you let yourself go, (become a huge hero) .
hell you’ll give Yorkshire men a good name if your not careful.
As Neil’s go I feel I let the side down.
Neil Armstrong “one small step”
Neil Platt “one long sit down”
Neil Jones “one sick puppy”
But I love you very much, and im sorry I never did get to right that ironic song for you.
from life’s long turbulent voyage over sea’s of deep
emotions, can arrive so unexpectedly.
To day tomorrow no one can tell when father time will ring
So be healthy and happy and wake each day grinning,
for when that day, too soon it comes, it might be
Hope you laugh your ass off at this, or at least get piss’t enough at me to go another 12 rounds,
don’t let the bastards grind you down and never give up without a fight.
Opps! Sorry you already got the gold medal on that one.
And say hi to all the wonderful people that I miss, I found my freedom, but I should have looked inside for the peace and not elsewhere.
You know I love you.
Neil ,r, jones.
January 29, 2009 at 12:42 am
Neil, Louise & Oscar,
You don’t know me but I was introduced to your blog by my Aunty, Kathy Turvey (Greenie). When I first logged on, I was hooked and read the entire blog in one sitting (into the early hours of the morning!) and have continued to do so on a daily basis. I am consistently lost for words upon reading about your courage, dedication for the cause and overall inspiration to all, but my loss for words doesn’t tell you that you have touched someone else’s life who will try to do all they can to support and raise awareness, so here I am…
January 29, 2009 at 1:01 am
On the last train home, another hectic day, sounds like you had lots of fun too, wifey aside :p just wanted to check in and say g’night, glad you home safe.
See you soon
Ps. Hi to ricky, awesome post!
Lindsey Fear (Haley)
January 29, 2009 at 11:28 am
Hi. I went to school with Neil right from starting at infants to leaving high school. I remember David his dad and its hard to think of Neil going through the same horrible disease. I visit the Plattitude site every day and find Neil and his family a great inspiration. It makes me cry every time I read it, as I remember Neil as he was and find it unbelievable that anybody should have to go through this, let alone somebody I know. Guys I admire your great strength and fight. Louise I dont know you but I think you have imense courage and love with in you. I don’t know how you do it. My thoughts, love and prayers are with all three of you. I am sending links to the website to everyone on my address list to try and raise awareness of MND and drum up support so we can try find a cure!!
Aunty Pau’s & Uncle Mel
January 29, 2009 at 12:13 pm
So glad you got home safe and sound and you had a really really fun time with Oscar and Louise (Louise ignore any remarks about your typing you do great at everything).
Hope you take note of my suggestion about private ‘bath times’.
Read Ricky’s story and I do hope that he will eventually find someone who loves him for himself – there will be someone and he shouldn’t give up, he sounds a really nice guy.
Enjoy the weekend and don’t wear yourself out and see you Monday night, even if it is only for a short while.
Much love and kisses
Aunty Pau’s & Uncle Mel
January 29, 2009 at 1:25 pm
I am glad to hear that you had a fantastic time at home with your lovely family.
This blog is touching people’s hearts and lives. You are making a difference
I organised a coffee morning in my office with the help of 2 colleagues (Ruth and Shereen); we circulated your blog on our e-mail and we had some posts printed in our cubicle. Many colleagues visited your blog and so far, we have raised £266 for the MND Association. We are hoping to sell more raffle tickets today and tomorrow.
I have never organised any charity activity before – in reality I hate organising events – and Ruth and Shereen worked really hard to raise every penny because you are such an inspiration to all of us, even for people who never met you
Many kisses to Oscar and Louise
January 29, 2009 at 3:06 pm
Glad your back home with Oscar & Louise.
As Cash said on an earlier post, we’ve embarked on our training program for the triathlon.
Latest update from me is that I got a brand new bike for xmas (spoilt brat I know) and me being me wasn’t quite happy with how the gears were running, so i tried to adjust the gears myself with an alan key and a hammer….and promptly broke it!
So I’ve just had to shell out £30 quid for some spotty little oik to fix it. Oh well!
Also I’ve knocked the fags on the head….. can you believe it!
Anyway chap get a Guinness down your neck mate!
I Hope to see you, Louise and Ozzpants very soon.
Love u all Jon & Loretta xxx
January 29, 2009 at 4:48 pm
So nice to hear from you mate. I hope you’re well.
P.S. Sorry for using this as message board.
Aunty Pau’s & Uncle Mel
January 29, 2009 at 6:23 pm
Glad you arrived home and enjoyed watching Oscar he is an absolute joy and credit to both of you. Hope you take notice of my suggestion with regard to ‘bath time’ and just tell everyone the lounge or your bedroom is out of bounds for a hour whilst you and Louise have a bath!
Try not to overdo it this weekend and see you Monday all being well.
Love as always to you all.