It's been a long day...

...but full of smiling faces which made it all worthwhile.

Hi everybody,
I have had the pleasure of numerous visitors today which has left me completely exhausted, so if you don’t mind I’ll be brief and return to the Sopranos which doesn’t involve me speaking.

The day started with a visit from Paul and Jo, who had only driven from London last night, returning from their travels around Australia and South America. Then Peter, Ann and Eleanor, former teachers of mine and their daughter – who brought with them some rather amusing photographs of my brother rather than me for a change. I will post said photos on the blog as soon as I get home! Next Brian and Gill arrived having driven from Edinburgh to spend a few hours with me before driving back (this was all too rare a pleasure as we seldom see each other since I moved to London). Hot on the heels of the latter, in fact overlapping for some comic moments, came another great friend Stephen and his mum Dorothy (I found myself reaching for the invisible wine glass and ready to be Murphied!). Next came my brother-and-sister-in-law and children, Douglas, Sara, Mairi, Hamish and Eielish (I’ve no idea what order the letters come honey sorry!). The children each brought me a little picture to tuck up with all my other photographs and mementos. To top off the afternoon, Louise and Oscar paid me a visit (although it has to be said that all they left me with was a pungent smell, thank you Oscar!).

Its-been-a-long-day_640.jpg

You can see why I might be a little weary. Nevertheless, each visit was equally important as the last. I love good people and I love good company. Today I was blessed with both. Thank you.

All my love,
Neil x


This took quite a bit of coordination but we managed it. I didn’t want people driving great distances and then having to share their time with Neil. It was another advantage of a stay at the hospice that Neil could have as many visitors as he wanted and at any time of the day, and I would have more space at home to accommodate anyone who wanted to stay.

Oscar got to spend some precious time with his cousins. He was always surrounded by adults and we could only afford two afternoons of nursery a week, so when children came to stay he got so much pleasure from it. With Neil in the hospice the children could make as much noise as they wanted. It was lovely to see Oscar wanting to join in and be one of the gang. – Louise (2013)

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followed this page 2013-05-03 22:05:58 +0100
commented 2013-05-03 15:07:26 +0100
Original comments:

Brian
January 18, 2009 at 11:36 pm
Robinson here, Platt.

Glad to be part of your day, Neil. Hope you enjoyed my stoopid little jig around the lamp post constantly in your line of sight. Was considering doing a pole dance around it fer you but wussed out. It was good to see you and needs to be repeated again as soon as. Glad to help with the laughter and hope we didn’t tire you out too much before the family arrived.

Love,

B&G

Lula Stefanski
January 19, 2009 at 11:47 am
Morning Neil,

Well it’s Monday and its raining here in Bognor!!
I hope that you are not too exhausted from the weekend and glad to hear that you finally got around to having a bath after 3 months!!

Nothing much happening here. Jake is home today and Jenson is at school until 3pm.Its photograph day at school, so I am hoping that Jenson will produce a stunning smile! They are growing up too fast. Jenson is nearly 4 ft tall now…wonder where he gets that from? They will be towering over me soon!

I am contemplating organising a Charity Ball in your honour and I need some ideas for a theme. Maybe you can help me out with that one? Leo’s wife is going to help; she has already oraganised several charity functions of this kind, and they were so successful.

You are still managing to reduce me to tears every time I log on, but with that comes laughter too. You should have been a comedian!

We miss you honey.
Much love, Lula x

Sara
January 19, 2009 at 12:33 pm
Hi Neil,

Hope you had a good rest and that you are not too tired out with your weekend of visitors. It was lovely to see you over the weekend and be able to give you a big hug. The children had a wonderful time with Oscar though, unfortunately, I think he has picked up some of their bad habits so expect some naughty behaviour!

I will be thinking of you all the time and sending down some Scottish love. As usual, of course, I will be checking out the blog about 100 times a day!!

Love you lots,
Sara x x

P.S. It is probably too much to expect a yorkshire lad to be able to spell EILISH

Jessica
January 19, 2009 at 4:29 pm
hi there, so jealous of your bath, i’m currently coping with in sub zero conditions as my boiler is out. With a 5 am start i was actally in tears knelt over the bath rinceing my hair this morning with icey water! Just a quick not to check if you have had time so cross reference the criteria my bank looks for to qualify a charity…(on email i sent last week) no rush just checking you got it… will happily submit if it does! Have a good rest. Jess

Dot Murphy
January 19, 2009 at 10:40 pm
Hello Neil, It was so good to see you, Louise and Oscar after a long time of relying simply on Stephen,Alison and Rick(Cash!?)for info. and then conjuring up my own images. Despite the window-sill booze gantry,my glass of port and your later inference to being Murphied,the visit was a sobering experience ,making my personal life’s angsts seem petty and self-centered. Your great fortitude amazes,and I’m sure passes to Louise by some magical osmosis. I hope you’ve had a good day,maybe with a luxury bath in the offing(or bathroom even) lots of love Dot x

ann
January 20, 2009 at 12:39 am
It was lovely to see you yesterday afternoon. I did try to drag His Majesty out before we exhausted you! Glad you liked the photos of Matt….I don’t suppose he will!!LOL….

Would like to say that I would run the London Marathon for you but I can’t…..but I will try and find someone who is and ask them to do it instead of me….I have always been better at watching sporting activities rather than doing them!

I think your friend should do a charity ball on the theme of West End musicals as there are not many you have not seen!! She could always ban Mama Mia!!

Will try Reiki on your recommendation…..a pupil once tried to improve my migraine by pracising Reiki on me on the coach on a school trip! It didn;t have much effect but I thought it was rather thoughtful of him to try!

I think of you often. Love to Louise and Oscar. Big hug!!

Love Ann
@breathingfilm tweeted this page. 2013-05-03 15:05:59 +0100
'It's been a long day' for Neil at the hospice, and it was special for Oscar too. #Plattitude #MND #ALS http://www.iambreathingfilm.com/it_s_been_a_long_day?recruiter_id=2
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